Wednesday, October 14, 2009

That their burdens may be light.

So Ryan and I have been asked to give a talk at church on Sunday. This is the shortest amount of time we have been in a ward before we were asked to give a talk. We will try our best. I was hoping that all you lovely people could help me. If you would be able to share a story with me about someone/something has helped your burdens be lighter I would love your input. Thanks a bunch!!
Don't be shy.

Wednesday, October 7, 2009

One Year Transplant Anniversary!

Daxtons one year transplant anniversary was on Sept 10, 2009. This has been an emotional post for me. There are so many emotions recalling last years event. The miracles that we have witnessed have been very humbling. We are so grateful for our Savior and his mercy and love.
We feel so blessed and we are excited to pay it forward.

We were not able to do a big celebration for Daxtons first birthday so I decided we could do a big celebration of life for his one year transplant anniversary. We had a wonderful time with friends, family, neighbors, and loved ones. We once again were overwhelmed by the love and support of all of those around us. Thank you for your continued support. We love you all so much!!

We went to visit Transplant team and say Thank you for all their amazing support!!

Getting a snoozer before the big party.

In memory of our Donor..We would not be here without your priceless gift.

Let the Party Begin!!

Dax and Nana Julie

Poppy Cook making balloon animals.

My daddy with his balloon creation!

We love you Nurse Peggy

Nana Julie and Nana Janet with the grandkids

Daxtons pediatrician the amazing Dr. Allred.

Our wonderful, amazing, fantastic, brilliant Transplant team.

Daxton hanging out with the beautiful Princess Aurora(Lauren)

My childhood girlfriends

Heart mommies and Heart babies

Wonderful supportive friends!

We love you!

Great Grandpa Tonge

Love my fam-damily

Kaidance and Daxton two miracle babies!!

We had a wonderful celebration. We are so grateful for the opportunity to celebrate
with our little man. We are so grateful for our donor. We pray for you and your healing and happiness. Thank you for your selfless gift. We love you.

Sunday, October 4, 2009

Super Slacker

I have so much I want to post about but for now I will just talk about what is going on right now. We are all sick. Daxton started us out a week and a half ago. Ellie has been super sick since last Thursday, Mady started getting sick yesterday and I woke up this morning with a sore throat. Hopefully it will skip Ryan and that Daxton won't get this bug again. Besides being sick we are doing good. We are settled in our new home and love it! I still can't believe that we have our own home. It is so fun.
I absolutely love love this time of year. This past week we went up Farmington canyon and had a weiny roast. It felt so good to be in the mountain surrounded by the beautiful fall colors. I love getting the Halloween decorations out, I love deciding what the kids are going to be for Halloween. Thankfully this year the costumes will be low maintanance. Daxton is going to be a dog so we are trying to teach him to bark. He does it everyone once in, he does a high pitch little yelp. It is cute. We still have a few weeks to work on it.
Hopefully the rain will stop for a little bit tomorrow so we can set up our graveyard in the front yard. If not we will rest a little bit. Isn't life grand!!

Friday, September 18, 2009

Serioulsy...

I have so so much to post and I am so far behind. I will catch up another day. I am in the mood to vent. So here goes it.

If I could change one thing at this very moment about the world it would be people judging other people. Please don't judge me when I am walking out of costco with my lysol wipes, two cute outfits for Daxton, block of cheese, 3 hotdogs and 3 drinks all while trying to keep a three year old in toe. Please young gentlemen don't share your thoughts out loud that "I should get a cart." If I wanted a cart I would have gotten one, it just so turns out that I parked where carts were not able to go-hence the armful of stuff!

Please don't judge me when I am running(jogging slowly) Please don't yell at me "run Forrest run." My name is not Forrest it is Hilary! Yes I know my bottom is big-hence the running!

Lets just try and give people the benefit of the doubt. Don't we all just want to be loved and accepted? I will answer that for you-Yes, we do!

Thanks for the venting session......

GO UTES!!!!

Friday, September 4, 2009

The results are in......

Today I was so super ornery and very snippy at my kids. Wondering what was wrong with me I came to the conclusion that I was very nervous for the results of the biopsy. I tried to call cardiology and no one answered. So I had to wait-I hate waiting. Around 6:45 Emily called from cardiology and told us the results-NO REJECTION!!!!! Yahoo!! I started crying and began to breath(that is when I realized how stressed I was) So his annual cath turned out to be a piece of cake. We celebrated tonight by going to a Bees game with our good friends. The kids had a lot of fun and at the end of the game we were able to run around the baseball diamond and get a gift certificate for a free kids meal at the spaghetti factory-bonus!
Now I can breath.....

Heart Cath

Yesterday morning started out crazy getting the girls ready, Daxton ready and heading up to the hospital for his annual heart cath. We were late(shocker) so we had to have the IV team come and give him his IV so that we could get a prograf level(this is one of two rejection meds that he will be on his whole life). The IV team was amazing and got an IV on the first try. Hallelujah! We then waited and Daxton took a short little cat nap. Ryan and I walked him down to the cath lab and handed him over. The anestesiologist gave Daxton a little sedative through his IV before we handed him over, it was pretty hilarious he started looking loopy it was amazing how fast it affected him.
Ryan and I then went and got some delicious Rainbow Cafe food-oh how we missed the cafeteria food.
The cath took 3 hours. We went down to meet Dr. Cowley and he said that everything looks great! Great! I was so so nervous but everything looked great! We are still waiting on the biopsy results we will not know the results of those until some time today. We are hoping that they will show no signs of rejection.
After the cath we had to wait in post-op for 6 1/2 hours. YIKES!! It was long. The doctors orders were that he had to lay flat for 4 hours and some how it turned into 6+ hours. Oh well. Ryan and I got to spend a little alone time in our semi private room and Dax and I just snuggled. He is still tired today but seems to be happy to be home. I have pictures to post but I can't find my camera bag so I will have to do that later. Thanks for all the prayers and positive thoughts!! We appreciate them so much.

Wednesday, September 2, 2009

Crazy week

Wow! Last monday was move in day and first day of school for Mady. I did not expect to be so emotional sending my baby to first grade but man that was hard. I tryed to hold it together until she went into her classroom. Sending her to kindergarten was a piece of cake compared to this. I do get a bad mom point for not knowing it was early out on the first day of school. Mady had to call me and tell me school was out, I was so embarresed. She came home from school telling me that it was the best day of her life so I think that things will be good.

The move to our first home has been a lot of fun. Everyday I love my house more and more. It has a lot of personality and fun characteristics. My mom got us the best house warming gift. It was a white swing for my front porch. It is perfect. Yesterday was a long filled day of painting. We got that done and now the fun part of hanging pictures and decorating begins.

Daxton news-Daxton had his 15 month check up yesterday. Everything looks great! He is still little of course (16lbs 9oz) but besides that he is doing awesome. He is now scooting everywhere. It is the cutest thing ever. He is starting to have stranger danger and seperation anxiety. I am a little worried about that because he has a heart cath on thursday. I hope that he doesn't scream and cry when they take him to the cath lab. We are praying for no rejection. If everything looks good with his heart and there is no rejection we will most likely be able stop giving him his 1 am dose of meds. I can't tell you how excited that makes me. Now maybe I won't be so cranky, uh actually not likely but I can pretend right?