Game Time!!
This is my sweet Daddy before and then after the game, he was a great sport! Love you daddy!!
What a fun game!! It was an awesome game, I really do wish that there weren't so many turnovers so that it would have been a closer match, one turnover awesome, two ok, but 5! But Hey we will take it. Utah is now 12-0 baby!! BCS here we come!! Thank you Grandpa for letting us go to all the games with you, it really was an incredible season, one I will always remember.
Thank you so much Grandma and Mallory for watching Daxton so that Ryan and I could both go to the game. Love you!
Things in the cook household are going well. Daxton continues to do amazingly well. He is drinking all of his food and his ng tube is still out. He didn't gain any weight today but he didn't lose any either. Hopefully if he continues to do well we will only have to go to clinic once a week instead of twice a week, that would be amazing. Daxton is starting to get stronger, he is rolling from side to side. He hates tummy time and he has no leg strength. I am going to have physical therapy come and help us out with those things.
This past week one of the nsl officers past away. The procession to his funeral came right in front our house. It was a beautiful tribute.
There were over one hundred police motorcylces and more than two hundred police cars.
It was a beautiful tribute to one of our public servants. I am glad that my kids were able to see that. I pray for the family that he left behind.
This is Mady reading to Daxton, she is just learning how to read and is very excited.
This is Daddy and Daxton picking grapes. Ryan has been Mr. Domestic. He has done two batches of canned grape juice and there is still more to come. What a man!
So today while we were at clinic I went to patients billing and asked them for a copy of all of Daxtons medical records. Funny joke. It took more than an hour for the poor girl to get them all printed off, I felt so bad, but I was glad that I went into the office because she told that it would have cost me 28 cents after the first ten. That would have cost me a lot. It is very interesting to read. I will have some reading material for many a day to come. Pretty impressive for a 5 month old. Yep those are all of his medical records. I also talked to billing and his bill for just the hospital stay this is not including doctors, I am still working on that number is $739,047.17!! That is a mouthful! Our insurance company loves us.
This last week has been a week of ups and downs. We started out the week with Daxton having excess vomiting. He wouldn't keep anything down. I would feed him his bottle and then an hour later everything came up. I tried holding him the whole time and not lay him down but that didn't make any differance it still came up. He also had a lot of diarhea. I was covered in poop and puke, yuk! We have been through every outfit Daxton has, every towel and every t-shirt of mine. It was a fun couple of days. Wednesday night he cried and cried. He literally cried from one in the morning until seven am. He stopped crying when I put him in his car seat to take him to his doctors appointment. Ryan and I were both saying that they were going to admit him for sure. Well the appointment went well, Daxton was super happy and smiled and everyone(little stinker) All of his test results were excellent his echo looked really good. The consensus-Gas! He is now on medicine for acid-reflux. They also let me take out his feeding tube so we could see if that was causing some of the throw up issues. After taking that out he has only thrown up twice and it has been minimal amount. It is like night and day differance. He sleeps better, he eats better. He is just a happy boy! He is doing so well. Tomorrow marks our two month mark from transplant. My heart is full! I can't believe how far we have come. I feel so very grateful for our many wonderful blessings.
Thursday night I got to go to the Utah vs. TCU game! Oh man that was awesome!! It was so much fun. I am excited for the Utah/Byu game. Ryan and I get to go together on a date!! Yeh!!
We gave him rice cereal for the first time. He didn't seem to mind it, but we put that on pause until we get all of his stomach stuff taken care of. I will probably start again tomorrow. Ellie was such a little helper, she took lots of pictures for us. She loves her little brother.
We got our final bill from the hospital. Any guesses on how much three months in the intensive care, on a ventilator, and a heart transplant are? Give me your guesses and I will tell you later. This number is not including doctors, just the hospital. All I can say is thank heavens for insurance.
