Thursday, December 18, 2008


Today we had our usual Thursday clinic, we are now down to just once a week. We are actually switching to once every other week, Ya!! We are progessing in that department. Today at clinic everything looks good with Daxtons heart, which is awesome. But we are having some weight issues. He hasn't gained any weight in 3 months! So they are talking about a G-tube. A g-tube is where they surgically put in a little "button" that would go right to his stomach(sorry if that isn't a very good explanation, I am not sure how else to describe it). Then we would allow him to keep eating everything that he already does but when he is done eating add some more food into the g-tube to help him gain weight and to stretch out his stomach. This is a minor surgery, but surgery none the less. I am thinking of asking for a 2 for 1 deal, except I will take out the food after I eat it instead of putting more in, hey sounds good to me. I am praying super hard that he will all of a sudden have this huge jump in weight and that his appetite will grow. I know that a lot of heart babies have this and that it is no big deal. So i should just get over it. It just hurts my heart to think of having him go through another surgery, big or small. Pray for my little man that he will gain weight. This is Daxton today at clinic in his santa suit with Dr. Everett and Michelle-they are part of the transplant team, they are amazing, we feel really blessed to be in such good hands.

On a more fun Mady had her ballet performance yesterday, she did so well. She loves to dance and has a lot of fun. She has progressed so much in just a year, it is so fun to watch.
Today we made our annual gingerbread houses, I love doing these, next year I think I will get one for me to do also. We got interupted doing the gingerbread houses by my dentist appointment, I found out today I most likely will need a root canal done, yuck! I think I will skip that and go straight to dentures. Just kidding....

Oh, on the no sleep note, I totally give my kids melatonin every night. I started to feel a little guilty like I was drugging them, so I stopped but then decided bedtime was a much happier time with some assistance. My problem has not been getting them to sleep it has been getting them to stay in their beds. We even bought these really nice bunk beds because Mady said she would sleep really good with them, ya right. Every morning this is how our conversations would go....
Mady.."mom, I am going to sleep on the top bunk tonight."
Me..."that would be great""
then right before bed...
Mady..."mom, I don't want to sleep on the top bunk."
Me..."I didn't think so.."
every single day, Ryan even offered her $5 if she would sleep up there. So finally we just took the top one down and now they are side to side. This has been working alittle better. I still wake up with a little one curled up right beside me. Oh well, this won't last forever....or will it?


Mike and Rebecca said...

Tell Ryan I'll sleep on the top bunk for $5.oo!!!


Anonymous said...

Hey Hills! I don't have your email or I'd email this to you! This is TOTALLY something Ry and Ty would do! It's awesome!

Pocket Taser Stun Gun, a great gift for the wife. A guy who purchased his
lovely wife a pocket Taser for their anniversary submitted this:

Last weekend I saw something at Larry's Pistol & Pawn Shop that sparked
my interest.. The occasion was our 15th anniversary and I was looking for
a little something extra for my wife Julie.

What I came across was a 100,000-volt, pocket/purse-sized taser. The
effects of the taser were supposed to be short lived, with no long-term adverse
affect on your assailant, allowing her adequate time to retreat to


Long story short, I bought the device and brought it home. I loaded two
AAA batteries in the darn thing and pushed the button.

Nothing! I was disappointed.

I learned, however, that if I pushed the button AND pressed it against a
metal surface at the same time; I'd get the blue arc of electricity darting
back and forth between the prongs.


Unfortunately, I have yet to explain to Julie what that burn spot is on
the face of her microwave.

Okay, so I was home alone with this new toy, thinking to myself that it
couldn't be all that bad with only two triple-A batteries, right?

There I sat in my recliner, my cat Gracie looking on intently (trusting
little soul) while I was reading the directions and thinking that I really
needed to try this thing out on a flesh & blood moving target.

I must admit I thought about zapping Gracie (for a fraction of a second)
and thought better of it. She is such a sweet cat.

But, if I was going to give this thing to my wife to protect herself
against a mugger, I did want some assurance that it would work as

Am I wrong?

So, there I sat in a pair of shorts and a tank top with my reading
glasses perched delicately on the bridge of my nose, directions in one hand, and
taser in another.

The directions said that a one-second burst would shock and disorient your
assailant; a two-second burst was supposed to cause muscle spasms and a
major loss of bodily control; a three-second burst would purportedly make
your assailant flop on the ground like a fish out of water. Any burst longer
than three seconds would be wasting the batteries.

All the while I'm looking at this little device measuring about 5'’ long,
less than 3/4 inch in circumference; pretty cute really and (loaded with
two itsy, bitsy triple-A batteries) thinking to myself, 'no possible way!'

What happened next is almost beyond description, but I'll do my best...?

I'm sitting there alone, Gracie looking on with her head cocked to one
side as to say, 'don't do it dipshit,' reasoning that a one second burst
from such a tiny little ole thing couldn't hurt all that bad.

I decided to give myself a one second burst just for heck of it. I touched
the prongs to my naked thigh, pushed the button, and ..

I'm pretty sure Jessie Ventura ran in through the side door, picked me
up in the recliner, then body slammed us both on the carpet, over and over
and over again.

I vaguely recall waking up on my side in the fetal position, with tears
in my eyes, body soaking wet, both nipples on fire, testicles nowhere to
be found, with my left arm tucked under my body in the oddest position, and
tingling in my legs?

The cat was making meowing sounds I had never heard before, clinging to
a picture frame hanging above the fireplace, obviously in an attempt to
avoid getting slammed by my body flopping all over the living room.

Note: If you ever feel compelled to 'mug' yourself with a taser, one note
of caution: there is no such thing as a one second burst when you zap

You will not let go of that thing until it is dislodged from your hand by
a violent thrashing about on the floor. A three second burst would be
considered conservative?


A minute or so later (I can't be sure, as time was a relative thing at
that point), I collected my wits (what little I had left), sat up and
surveyed the landscape.

My bent reading glasses were on the mantel of the fireplace. The recliner
was upside down and about 8 feet or so from where it originally was. My
triceps, right thigh and both nipples were still twitching.

My face felt like it had been shot up with Novocain, and my bottom lip
weighed 88 lbs. I had no control over the drooling.

Apparently I shit myself, but was too numb to know for sure and my sense
of smell was gone. I saw a faint smoke cloud above my head which I believe
came from my hair.

I'm still looking for my nuts and I'm offering a significant reward for
their safe return!!

P. S. My wife loved the gift, and now regularly threatens me with it!

'If you think Education is difficult, try being stupid.'

Jon, Juliann, Anna, Andrew said...

We'll pray for Daxton to gain weight. Mady looks adorable in her ballet outfit!!

The Simmons Family said...

Hopefully Daxton will gain weight on his own and won't need the GTube. It really isn't a big deal... but still I have been to chicken to go that route. Owen has always had an NG tube... no sign of getting rid of it either. BUMMER!

I'm hoping that someday we'll rid of all tubes and wouldn't that just be fantastic!


Leslie said...

We have a friend whose daughter has had a g-tube for years. It's been a miracle for them. I'm sure you cannot imagine another surgery, but at least you know, if it's necessary, that the outcome will be something good. You are in our prayers.

Your stories about bedtime are so funny to me. I know. Not so funny to you. :-)

I love you.